How sad and joyous is my life?

How sad and joyous is my life?

 A holiday message.

How sad and joyous is my life?  I am so delighted in the everyday existence of people and things, thankful for the opportunity to be.  I marvel at the man who quietly accepts his fate and the young child who decides to fight hers.  I have seen the strong fall to their knees and a black man become president.  I was there when seeds turned to life and laughter filled every bit of space around me.  How amazing every breath, step, song, thought, and good deed done for others.   How glorious the vastness of a universe that most of us will never see.  How soft the stardust that falls upon us from a billion years ago and the light that traveled from the Sun just to meet us in a point in time.  How joyous am I?

How sad and joyous is my life.  How sad am I? to watch the World tumble into war and destruction in the name of Gods, safety and wealth.  To think the children who come after my children and theirs may not have clean water, polar bears, rainforest, gorillas, elephants or whales.  How tragic the devastation of hunger which kills children and adults.  How shameful, to allow myself to forget the faces of those who drag themselves through the streets because   they cannot afford a wheelchair or transportation.  Lest I forget, those with disabilities locked in institutions, trapped in poverty and disavowed by society’s unwillingness to accept them as full members of their community.  The grief is greatest when I forget.  How sad am I?

There is no middle moral ground on which to stand or knee; or crawl.  There is only action and inaction, only acknowledgement that we cannot run from truth.  There is acceptance of our wealth in relation to those that have nothing to give, but still manage to thank the lord for all they have.

 

Javier Robles

Copyright 2008

 

 

Can Obama make it better?

Will anything change under an Obama administration for people with disabilities?   That is the fundamental question people with disabilities are grappling with.  Will there be meaningful change that is measureable in four years?  Or will it be more of the same, repackaged with a Democratic gift wrap?  There is possibly a bright spot to the beginning of this four year journey with the first African American President of the Nation, he actually acknowledged people with disabilities in his victory speech.  For a few seconds the world thought about the existence of an overlooked and underserved portion of the United States populace.  But will acknowledgement lead to action in a depressed economy?  The worst economy in a century will pose a serious challenge to this President and an even greater challenge to our community.   Will we matter?

There are so many questions facing the new President when he takes office in January.  Many to which we may not know the answer to for years to come.   So what exactly is it that people with disabilities want?  I suppose primarily the community as a whole is seeking a President who keeps the promises made to them; someone who understands the importance of inclusion and diversity in their Administration and acts on it. 

Too many politicians understand the importance of diversity but forget to implement it when they come into office.  I have served on election campaigns for successful candidates who promised much to people with disabilities and eventually delivered little, if anything.    Our diversity as a group makes us great, we are Latino, White, African American, Jewish, Moslem, male,female but it is also our Achilles heel.   We become easy to forget as we fade back into distinct groups and are no longer organized around supporting our favorite candidate.  Trying to track us as a group really is like “nailing Jello to the wall”.  We are a mass of ideologies and ideas with a poor track record of long term cohesiveness.  What I am saying is that we can come together as a non-homogeneous group for certain issues, i.e. national elections, but we do not sustain that group push. 

That lack of constant push I would argue is what separates us from other groups when it comes to overall empowerment.  It is also what we need, to ensure that politicians do not forget about or overlook our issues.  I am not saying that we cannot do this.  We in fact have a track record of successful pushes for the Americans with Disabilities Act, Rehabilitation Act of 1973, Work Incentives Act of 1990 just to name a few.  Success is achievable. 

Regardless of how many promises are made it is us as a group that can make sure they are kept.  We as a group do not have the luxury of waiting till the next election or the next law to pass before we act.  There are commonalities which unite us all, regardless of our racial, religious, or ethnic background.  We must continue to unite on common ground as we move forward. Issues such as housing, employment, health care, transportation, and education connect us all, but affect people with disabilities disproportionately.  Poverty is the direct outcome of the neglect experienced by our community by past Administrations, who promised jobs, health care and inclusion.  It is not in our best interest to meld into the background and hope for the best.  We must maintain that commonality of struggle and that take no prisoner attitude to ensure promises are kept this time.       

In my last blog about Sarah Palin I spoke about the convenience of using people with disabilities when it is politically expedient.  After all many of us can make a great photo OP even better.  Regardless of our feelings and likes or dislikes we must begin holding office holders accountable.  With that in mind, here are a few things that you can do to ensure that our views and needs are not put aside until the next election:

·         Find the commonalities which unite your group with other groups such as employment, education, or health care.

·         Agree to push issues together which benefit all such as, stem cell research or handicapped parking bills.

·         When politicians come into office in January 2008 write them a letter as to what you expect to be as it regards people with disabilities.

We cannot let four more years go by without action and cohesion.  It’s your life.  Live it!

Sarah Palin: A Serious Diss-appointment for People with Disabilities

October 26, 2008 by Javier Robles

This November 4th, many of us will have an opportunity that we as people with disabilities and family members of people with disabilities cannot pass up. We have within our hands a mandate to change the face of this nation’s capitol.

Why a mandate you ask? Because we as a group cannot afford four more years of poverty and indifference from those we “supposedly” put into office. We must not tolerate the cold shoulder we received from the Bush Administration when it came to issues of housing, employment, stem cell research, and civil liberties violations. Everyone I know is poorer today than they were eight years ago and they are enraged. Enraged at the lengths to which people with disabilities are suffering at the hands of politicians too rich to feel their pain.

You may be thinking, “Sarah Palin understands my needs as a person with a disability; she has a son with Down syndrome and a nephew with autism.” However, that does not qualify her to run a country! I know many mothers of children with special needs who are more qualified than she is. The argument that she will protect our interest as a group is weak and full of holes. Let me list a few:

Mrs. Palin is new to disability culture and history, as new as her child is old. I have had a disability for 25 years but my mother does not ever claim to understand the “special needs” I have. Many mothers of children with disabilities would tell Mrs. Palin, “You haven’t seen anything yet.”

How do I know? Because I have heard from parents of schoolchildren who are teased until they cry about their “special needs.” Because they have asked me, “If she is so talented why won’t anyone give her a job?” Because I don’t know what to say to the immigrant mother of a 17-year-old autistic child who will not qualify for health care in a year.

Mrs. Palin recently proved in an interview that she is too rich to care about the average person with a disability. In an interview on Colorado News 9 on Oct. 21, she stated that she was against Amendment 51, which seeks to raise the sales tax by one cent on every $10 spent in each of the next two years.

The money would go to help the roughly 12,000 kids and adults in Colorado who currently are on a wait list to receive state services such as home nursing care and job training. They suffer from autism, Down syndrome and mental retardation.
Mrs. Palin said “that there must be an alternative to raising taxes,” in contrast to Colorado’s former First Lady, a Republican who supports the amendment. Besides never having visited Russia, she obviously has never visited a developmental center.

Last, Mrs. Palin, like many politicians before her, thinks she has a chip she can cash at our table. People with disabilities are not a commodity one cashes in every four years. They are part of America’s promise for a better future and inclusion regardless of your place on the economic ladder. Don’t be fooled into thinking this election is about an innocent little boy in Alaska. It is not! It is about those 12,000 kids in Colorado who in the estimation of “some” are not worth one cent on every $10.

Your vote. Your Choice. Your Future.

http://www.thisabled.com/

What is stopping you?

Day in and day out I run into people with disabilities who are frozen in time.  They live in a world of dependence and fear; a dark corner where the slightest whimper may cause them to lose a minor gain.  What about my Social Security benefits or my medical coverage?  I don’t want to cause waves or hurt someones feelings.  I am happy that they give me that much!  It is frustrating to see the victims we have become.  Not all of us-but some.  It is self-oppression which is the order of the day.  We look in the mirror and see who we want to be.  However, we avert our eyes to what is behind us and we are transported to what others wish us “to be”. That often entails quite and docile people that know who is “buttering their bread”.  We then turn our eyes away from our reflection to the ones others are shining a light on. 

Why should we care?

 In 1989 before the passage of the Americans with Disabilities Act of 1990 (ADA), there were more people with disabilities employed than there are today.  Politicians continue to argue about the benefits or deficits of stem cell research ; but not many ask those most affected what they think.   Poverty is “crippling” the ability of people with disabilities to pull out from under governments thumb.  Government benefits are keeping us poor.  Very poor.  America is a great Country, no doubt.  We are luckier than many in the Third World who struggle just to get food on the table.  However, as long as Americans with disabilities continue to be marginalized we suffer a great loss.  What does all this have to do with the person in the mirror?  Everything.  Complacency and fear are having a serious side effect, and that is utter dis-empowerment and blatant poverty.

The power to take control away from others and put it in your hand starts and ends with you.   Starts and ends with me!

This Blog will continue next week with action steps you can take.

J

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